Peter continues with his up and down path. Today was not so good, nausea most of the day, medicated for the nausea which resulted in sleeping almost all day. Peter is not having much success eating. He either has no interest in the food, or eats and then it come right back up. The staff assures us this is quite normal. They will probably start IV nutrition tomorrow. As explained today, he can still order meals and try and eat if he can, but if eating doesn't work at least we know he is getting adequate nutrition.
According to his weight this morning (around 4AM) he is up 11 pounds. His face is puffy, his feet and left arm from elbow to hand are swollen as is his abdomen and other parts further south. He got Lasix today but it didn't seem to make much difference. I am going to try and get to the hospital for rounds tomorrow so I can hear first hand what the team says.
I know he gets frustrated with all these things. He remains pleasant as much as possible. He really doesn't complain much except to say he is tired and tired of all this. Hopefully all this stuff will pass soon.
He got some good news today: white blood count is up to .3. The drs. seem to be thinking that his new marrow is starting to engraft and maybe even work. Still haven't decided if it is the girl or boy that is doing it. I'm rooting for the girl.
I'll be going home for the day tomorrow. I don't think we were really thinking when we came up here - we sure left alot home that we will need. I have a 2 column list of stuff to bring back with me including winter clothes, heavy coats and gloves. Since I have no oven here I will also bring a toaster oven and my crock pot. When Peter is ready to eat, I will be ready to cook.
That's it for today,
Wendy
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