Peter's been in the hospital since Wed. afternoon and looks and feels better. They finished most of the testing yesterday - still some bloodwork tests they are waiting on, but the general feeling is that it is GVHD (graft versus host disease). The CAT scan showed inflammation in the colon which was confirmed by the colonoscopy. There are lesions in the colon but don't know if they lesions caused the diarrhea or vice versa.
They installed a new Hickman catheter in his chest on Thursday and started the IV nutrition that night. He still is only allowed ice chips by mouth - no food to eat until the gut gets a chance to heal abit. The initial estimate was 5 days in the hospital, but that doesn't seem like it is realistic. I imagine it will be longer, and then a few weeks outpatient.
Peter's spirits are much better. He knows he is in the right place and is confident once again that all will be well, eventually - just not as fast as we had hoped. He has been talking with a counselor and that is helping also.
I forgot about "March Madness" here in NC and have been having a time trying to get a hotel room for 3 weeks straight. For now I am staying with friends and hope that by Thursday we will have a hotel room somewhere.
I'll keep this blog updated as best I can. I am bringing the laptop back to Durham with me today.
Wendy
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1 comment:
You are in my prayers every day.
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