Things are moving ahead, slowly but surely - actually a lot slower than we would like, but it is all going in the right direction.
Peter continues to work from home and that helps keep his mind occupied. He has been doing alot of reading both for work and for pleasure.
Dr. Horwitz at Duke is very pleased with his progress. Some of his meds are still being adjusted so we continue to see changes. There should be some big improvements in his strength in the next week or so because the prednisone dose should reach a level that will allow him to start rebuilding muscle rather than maintaining the status quo. Hopefully we will be able to add weights to his exercise regimen soon.
Peter did not lose any weight this past week which is good. The swelling he has had in his legs in now only in his feet, actually mostly his toes. So not losing weight actually meant he gained some weight because he lost water weight. His eating is getting better, but he continues to need "Boost" supplements daily. I think as his strength comes back his appetite and his ability to eat will improve also.
These past few weeks that we have been home have been hard on both of us. We both frustrate easily; Peter for what he is unable to do, and me because I have to watch what he is unable to do and wait for him to ask for help. He is working hard and we are both trying hard not to take out our frustrations on each other. We have both been to see a counselor individually and will meet with him together this week. I think it is helping, but will sure be glad when we look back on this as a "remember when" and not as the present!
We go to Duke again Wed. and then maybe after that it will be every other week. It sure will be nice not to spend so much time in Durham - we are definitely vacationing somewhere else next year.
Take care,
Wendy
No comments:
Post a Comment